Privacy Statement Scientific Research – National MS Foundation

1. Data Controller

The data controller for the processing of personal data in the context of scientific research is:

Stichting Nationaal MS Fonds
Industrieweg 130 C
3044AT Rotterdam, the Netherlands

2. Processed personal data and purposes

The National MS Foundation funds, coordinates, and monitors scientific research and manages grants and funds. In this context, personal data of researchers are processed for the following purposes:

• Assessment and processing of grant applications;
• Communication with applicants and stakeholders regarding applications and project implementation;
• Publicity, fundraising, and education;
• Financial processing and reporting;
• Quality assurance and compliance with grant conditions;
• Relationship management and evaluation of research projects;
• Transparency and accountability towards donors and other stakeholders.

3. Types of Processed Personal Data

Researchers:

• Name, contact details (email address, phone number);
• Organisations details and job-title;
• Researcher ID, organization ID;
• Employer, expertise, titles;
• Bank details (if applicable);
• Substantive data on project progress and results;
• Electronic signature;
• Names and roles of project partners or co-funders.

Legal grounds for data processing

The processing of personal data is based on the following legal grounds, as set out in the General Data Protection Regulation (GDPR):

• Performance of a contract (Article 6(1)(b) GDPR): Processing is necessary for the execution of grant contracts and pre-contractual measures, such as the assessment and awarding of grants to researchers and institutions.
• Legal obligation (Article 6(1)(c) GDPR): Processing is necessary to comply with legal obligations, such as tax legislation, financial reporting requirements, and the Anti-Money Laundering and Terrorist Financing Act (Wwft).
• Legitimate interest (Article 6(1)(f) GDPR): Processing is necessary for the legitimate interests of the National MS Foundation, such as ensuring transparency, conducting internal quality controls, generating publicity, financial administration, and relationship management with grant recipients and referees.
• Consent (Article 6(1)(a) GDPR, if applicable): In cases where explicit consent is required, such as for optional communication or marketing, consent will be requested and can be withdrawn at any time.

5. Retention Periods

Personal data will not be kept longer than necessary for the purposes for which they were collected, taking into account legal retention periods. Data related to research projects may be archived in the public interest.

6. Information security

The National MS Foundation takes appropriate technical and organizational measures to protect personal data against unauthorized access, loss, or unlawful processing. All employees involved in grant applications are contractually bound to confidentiality.

 7. Your Rights

You have the following rights regarding your personal data:

• Right of access, correction, and deletion;
• Right to object to processing;
• Right to restriction of processing and data portability;
• Right to withdraw consent (if applicable).

You can exercise these rights by contacting us using the details below.

8. Questions or Complaints

If you have any questions about this privacy statement or wish to file a complaint about the processing of your personal data, you can contact us via email at [email protected] or by phone at +31 (0)10 591 98 39. You also have the right to lodge a complaint with the Dutch Data Protection Authority.

9. Changes to this Privacy Statement

This privacy statement may be amended. The most recent version will always be published on the National MS Foundation’s website.